Life Without a Pancreas Five Years Post TP/AIT

May 19, 2016 Today is a special day for me. A day worth celebrating. 5 years ago today I spent 14 hours on the operating table while one of the best surgical transplant teams performed the complex, life-saving surgery and transplant called TP/AIT. My entire pancreas and spleen were removed along with part of my […]

Bone Loss and Low Vitamin D

July 1, 2015 Been having bone pain and low energy lately. I am just not able to do much most days. So I had a DXA bone density scan done (recommended to be done every other year for post TP/AIT patients). I found out I have mild-moderate osteopenia in my hips and lower spine. This […]

Food: How I Miss You, How I Wish I Could Have You Every Day. Struggles of a Broken Stomach: Gastroparesis.

Aug. 1, 2014 August is the national awareness month for Gastroparesis. Gastroparesis from a patient’s point-of-view: I struggle with a condition called gastroparesis which causes the stomach to have an inability to empty properly, which can make eating and even drinking fluids limited most days and even impossible on bad days. I believe this condition is much more devastating, […]

Low Blood Pressure

Aug. 18, 2013 Just a fast update: Forgive me for not being able to respond to emails lately. The last week my blood pressure has been really low. It is low while sleeping, while waking and all throughout the day and night. I am very dizzy and it makes writing and reading very hard. I’m […]

This Too Shall Pass

Aug. 9, 2013 I am feeling full of emotions lately. I sometimes have a hard time reaching out and asking for help. I have found that the times I tend to worry are when I don’t know why something is happening or when I have to meet or see a new doctor. I have learned […]

Good Thoughts, Smiles, Family and Friends

April 11, 2013 I feel like I have been a bit busy lately. I’ve been trying to balance rest, doctor visits and the most important thing…life and living. I’m sorry I haven’t been online much lately. I had to take a break. But I did want to give a quick update. I’ve been getting weekly […]

For you…

Jan. 28, 2013 sending thoughts out today to all the patients and families suffering with any form of pancreatitis, SOD, cancer, recovery or illness. remember you are not alone. and there are many people who love you and who hope to see you get through this. let there be peace in your heart, hope resting […]

Eventful Follow Up

Dec. 4, 2012 So had my 18 month Total Pancreatectomy and Auto-Islet Transplant follow up last week. It was an eventful few days and my doctors had a lot of good information for me. I lost a few more pounds when I showed up. I don’t have much more to lose…down about 8 pounds of […]

Recovery, Home Sweet Home

Oct. 22, 2012 My last day in the hospital I was in good spirits and more than ready to go home. And now I’ve been home from the hospital for about a week recovering from my last surgery (adhesions/twisted colon). What should have been a simple 5-7 day hospital stay turned into 18 days. I […]

Surgery for a Twisted Colon and Adhesions

Sept. 30, 2012 Thursday, Sept. 27, 2012 evening (3 days ago) I was taken back to have surgery to fix a small bowel obstruction. Surgery lasted a few hours and I did well. I have a good size incision running up and down my abdomen – close to my belly button area. My doctor felt it […]

Tags: , , , ,