Ehlers–Danlos Syndrome (EDS) – Connective Tissue Disease – My Aching Joints

July 28, 2013 Last year my cardiologist tested my ANA and it came back as being positive and suggestive for a connective tissue disease. I was referred to a rheumatologist. When I first saw the rheumatologist he examined me and mentioned it seemed I had pain in multiple joints. Then noted my joints were very […]

Words From My Past – Sphincter of Oddi Dysfunction and Pancreatitis

July 22, 2012 Below are some words I wrote before starting this blog back in 2010. It reminds me of how hard it was to live with Sphincter of Oddi Dysfunction and pancreatitis and how far I’ve come since then. How thankful I am to be rid of my sick pancreas. 1-4-2010 – “Looking back […]

Hurry Up and Wait

Jan. 19, 2011 For the past four years I feel like I’ve been waiting for something. “Here’s a surgery and it should help you.” It’s only a matter of days or months that I’m back on the floor crying, curled up into a ball – chills, pain and nausea – hurrying to try and find […]

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