Ehlers–Danlos Syndrome (EDS) – Connective Tissue Disease – My Aching Joints

July 28, 2013 Last year my cardiologist tested my ANA and it came back as being positive and suggestive for a connective tissue disease. I was referred to a rheumatologist. When I first saw the rheumatologist he examined me and mentioned it seemed I had pain in multiple joints. Then noted my joints were very […]

For you…

Jan. 28, 2013 sending thoughts out today to all the patients and families suffering with any form of pancreatitis, SOD, cancer, recovery or illness. remember you are not alone. and there are many people who love you and who hope to see you get through this. let there be peace in your heart, hope resting […]

Words From My Past – Sphincter of Oddi Dysfunction and Pancreatitis

July 22, 2012 Below are some words I wrote before starting this blog back in 2010. It reminds me of how hard it was to live with Sphincter of Oddi Dysfunction and pancreatitis and how far I’ve come since then. How thankful I am to be rid of my sick pancreas. 1-4-2010 – “Looking back […]

A Year of Sharing, Surviving and Hopes for Good Health to All

Jan. 2, 2012 Happy New Year! A year ago I create Pancreas Tomorrow (this website and blog) to share my history with others who face the hard road of disabling diseases which have been labeled as “incurable.” Before deciding to start this blog, I had been a bit selective when it came to letting people […]

Support and Hope through Knowledge

Aug. 17, 2011 The other day my mom said some words to me that truly moved me. She talked about how some people who are sick can’t find the strength to learn about the illness. Some people can’t handle thinking about it while others need to know every detail. Being as ill as I was, […]

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Sphincter of Oddi Dysfunction, Chronic Pancreatitis and TP/AIT in my words

April 21, 2011 This is my story about living with sphincter of Oddi dysfunction, chronic pancreatitis and the steps leading up to having a total pancreatectomy with auto islet transplant (my whole pancreas removed).

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Sphincter of Oddi Attack – Remembering my Worst

Feb. 1, 2011 March 2008 and it was 10 days after having my gallbladder removed – I remember that day like it was yesterday. I had an appointment to have a six hour glucose test done since I had been having many symptoms of hypoglycemia which even continued after having my gallbladder out. I remember […]

Hurry Up and Wait

Jan. 19, 2011 For the past four years I feel like I’ve been waiting for something. “Here’s a surgery and it should help you.” It’s only a matter of days or months that I’m back on the floor crying, curled up into a ball – chills, pain and nausea – hurrying to try and find […]

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Hello. Sphincter of Oddi Dysfunction and Pancreatitis. Here’s my story so far…

Dec. 27, 2010 To bring in the new year, I’ve decided to start a blog. I will discuss and share my experience with living with Sphincter of Oddi Dysfunction, Pancreatitis and the pain and struggles that comes along with it. My name is Julie. I’m 28 and married. Overall I was a pretty healthy kid […]

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