Change with the New Year

Jan.-Feb 2016 updates Jan. 16, 2016 Been a long time since last updated. Had few good weeks here and there. Really have gone down hill. Struggling with my chronic protein malnutrition. I have been having more days needing a wheelchair to get around. I am very weak and mostly bedridden. I have a cold on […]

A Hard Month in February: Recap of Spesis and Recovery

Recap from Facebook Posts from February 2015 Written on Feb. 4, 2015 Been having a rough few weeks. Many of my conditions are in a flare up. In and out of paralysis with my arms and legs. Abdominal pain and nausea have been a bit rough today. Low sugars from not being able to eat. […]

Update – A Decline

Aug. 13, 2014 Sadly, I have hit a decline in my health. Have been very tired and weak the past few weeks. Dealing with starvation pain and muscle wasting in my legs. Very low energy levels. Low food/liquid intake, been vomiting and dehydrated. Saw dr yesterday and he said I am clearly very ill and […]

My Power Port

Feb. 28, 2013 Well, I’m about 3 weeks out from getting my Power Port. I’ve been to the ER twice for dehydration since having it and they were too afraid to use it yet. But I was able to get it flushed last week and the blood return was good and the nurse said that […]

Mito Results and Power Port Placed

Feb. 7, 2013 Yay!!! My mito labs came back normal! Best news I’ve gotten in a long time. I’ve been told there is still a chance of having the disease and can be seen in a muscle biopsy…but I’m not ready to go down that road yet. As for now…I am happy, happy. I got […]

So They Say – Needing a Port

Jan. 13, 2012 So, when I went for my weekly fluids at my doctor office last week, I started to feel pretty bad. By the time I got to the doctor office, I was crying with every step I took, using my cane to help me stay up on my feet. I was weak, dehydrated […]