Eventful Appointment
Posted by juliebernal | Filed under Blood Pressure/Heart Rate, Chronic Illness/Rare Disease, Digestion & Nutrition, Dysautonomia/Autonomic Dysfunction & Neuropathy, Ehlers–Danlos syndrome (EDS), Feeding Tubes & Total Parenteral Nutrition (TPN), Gastric Stimulator (Stomach Pacemaker), Gastroparesis (Delayed Gastric Emptying), Hypermobility (Joint, Muscle & Ligament Pain & Weakness), Malabsorption/Dehydration, Multiple System Atrophy (MSA), Nausea & Vomiting
Jan. 25, 2012 So, I had my appointment with the Autonomic Heart Specialist yesterday. I had some special testing done and met with the doctor. He spent over an hour talking with me and my dad. He was full of knowledge and the day was very eventful. He would like for me to see a [...]
Mitochondrial Disease Awareness
Posted by juliebernal | Filed under Abdominal Pain, Acute & Chronic Pancreatitis, Blood Pressure/Heart Rate, Chronic Illness/Rare Disease, Diabetes/Blood Sugar, Digestion & Nutrition, Mitochondrial Disease (Mito), Multiple System Atrophy (MSA), Nausea & Vomiting
Sept. 17, 2012 If having problems involving three or more organ systems, one should look into getting tested for Mitochondrial Disease. It is Mito Awareness Week – Sept. 16-22, 2012! I have a family member who was diagnosed with Mitochondrial Disease at a young age. He is almost six years old and has had a [...]
Tags: Mitochondrial Disease (Mito)
Latest Doctor Visits and Update
Posted by juliebernal | Filed under Abdominal Pain, Blood Pressure/Heart Rate, Chronic Illness/Rare Disease, Diabetes/Blood Sugar, Infection/Fever, Multiple System Atrophy (MSA), Total Pancreatectomy & Auto-Islet Cell Transplant (TP/AIT)
July 31, 2012 Last week I had a fever and really bad chills, headache, some swollen lymph nodes, a tight neck, some strange bruising that I’ve had for few months that started to spread and some pain inside of my bones – no sign of cold or flu. I was not doing well and I [...]
No Place Like Home
Posted by juliebernal | Filed under Abdominal Pain, Blood Pressure/Heart Rate, Chronic Illness/Rare Disease, Multiple System Atrophy (MSA), Recovery & Coping
July 8, 2012 Made it home from the hospital last week after a 3 day stay and I can’t even express how good it feels to be home. I was getting pretty worried and had many hard days and nights in a row of pain, blood pressure issues, and dizziness. My wonderful heart doctor has [...]
Tags: blood pressure, Hospital Stay, Illness, Multiple System Atrophy (MSA)
And the Doctor Says…
Posted by juliebernal | Filed under Blood Pressure/Heart Rate, Chronic Illness/Rare Disease, Multiple System Atrophy (MSA)
May 10, 2012 I have been avoiding my situation and I wasn’t ready to talk about my current health issues until now. The past four weeks have been filled with confusion, questions, sadness, tears and moments of facing what my future may (or more so…may not) hold for me. I am finally to point where [...]
Tags: Cardiac Pacemaker/Ablation, hear rate, low blood pressure, MSA, Multiple system atrophy, neurological disorder, Orthostatic Hypotension, Parkinson's disease, Rare disease, Shy-Drager syndrome
