Sept. 15-21, 2013 It is Mito Awareness Week 2013! For those fighting the battle and those we have lost! Let’s Raise Awareness and Find a Cure! In loving memory of my nephew, Eric Thomas Clement! We will always love you. Forever you will be in our hearts, sweet boy!
Posted by juliebernal | Filed under Chronic Illness/Rare Disease, Dysautonomia/Autonomic Dysfunction & Neuropathy, Gastroparesis (Delayed Gastric Emptying), Mitochondrial Disease (Mito), Power Port/Central Venous Line
Feb. 7, 2013 Yay!!! My mito labs came back normal! Best news I’ve gotten in a long time. I’ve been told there is still a chance of having the disease and can be seen in a muscle biopsy…but I’m not ready to go down that road yet. As for now…I am happy, happy. I got […]
Jan. 29, 2013 This post is well over due and it has been too hard to write until now…it saddens me to say my amazing nephew, Eric – who was 5 years old – passed away a few months ago (Nov. 26, 2012) from mitochondrial disease (Mito)…a horrible disease that can cause any organ to […]
Posted by juliebernal | Filed under Abdominal Pain, Acute & Chronic Pancreatitis, Blood Pressure/Heart Rate, Chronic Illness/Rare Disease, Diabetes/Blood Sugar, Digestion & Nutrition, Mitochondrial Disease (Mito), Multiple System Atrophy (MSA), Nausea & Vomiting
Sept. 17, 2012 If having problems involving three or more organ systems, one should look into getting tested for Mitochondrial Disease. It is Mito Awareness Week – Sept. 16-22, 2012! I have a family member who was diagnosed with Mitochondrial Disease at a young age. He is almost six years old and has had a […]