Change with the New Year

Jan.-Feb 2016 updates Jan. 16, 2016 Been a long time since last updated. Had few good weeks here and there. Really have gone down hill. Struggling with my chronic protein malnutrition. I have been having more days needing a wheelchair to get around. I am very weak and mostly bedridden. I have a cold on […]

Bone Loss and Low Vitamin D

July 1, 2015 Been having bone pain and low energy lately. I am just not able to do much most days. So I had a DXA bone density scan done (recommended to be done every other year for post TP/AIT patients). I found out I have mild-moderate osteopenia in my hips and lower spine. This […]

New Normal with Chronic Illness

March 26, 2015 Hi there. Hope everyone is having a good painfree day. I am starting to have some really good days this last few weeks. With all my chronic health issues I have learned to take the moments and days as they come. And each step forward is a victory and something to be […]

A Hard Month in February: Recap of Spesis and Recovery

Recap from Facebook Posts from February 2015 Written on Feb. 4, 2015 Been having a rough few weeks. Many of my conditions are in a flare up. In and out of paralysis with my arms and legs. Abdominal pain and nausea have been a bit rough today. Low sugars from not being able to eat. […]

Reflection of Moments

Nov. 22, 2014 Moments reflecting. The days lately have been filled with reminders of how important love and compassion truly are. Family and friends grieving for a loved one, a family member taken to surgery, a husband worrying and caring for a sick wife, a survivor back in the ICU unable to eat and breathe, a […]

Autumn Months – The Good and the Bad

Oct. 31, 2014 It has been too long since I gave an update. I have been doing pretty well lately and seem to be mostly stable with everything. I am still on my TPN and down to every other day. I gained all my weight back and then some. I am very pleased and it […]

TPN and Adjustments

Aug. 27, 2014 The last few weeks I have felt like a zombie. Sleeping hours on end, too sick to move or feel like myself, low blood sugars and severe nausea. Hubby sometimes having a hard time waking me. Covered in hives under my port dressing from adhesive allergy. Has not been easy for me […]

Update – A Decline

Aug. 13, 2014 Sadly, I have hit a decline in my health. Have been very tired and weak the past few weeks. Dealing with starvation pain and muscle wasting in my legs. Very low energy levels. Low food/liquid intake, been vomiting and dehydrated. Saw dr yesterday and he said I am clearly very ill and […]

Food: How I Miss You, How I Wish I Could Have You Every Day. Struggles of a Broken Stomach: Gastroparesis.

Aug. 1, 2014 August is the national awareness month for Gastroparesis. Gastroparesis from a patient’s point-of-view: I struggle with a condition called gastroparesis which causes the stomach to have an inability to empty properly, which can make eating and even drinking fluids limited most days and even impossible on bad days. I believe this condition is much more devastating, […]

A Pain in my Shoulder!

July 16-July 8, 2014 Shoulder pain and weakness! Ugh! Life with a connective tissue disorder – EDS! I threw my shoulder out. And then another pop. Thought it would get better on its own because sometimes I can pop my shoulder back in place. But it just got worse. Finally went to chiro for adjustment. […]