Just Part of the New Normal

Dec. 9, 2014 I wrote this back in Dec.: Amazing how I have been adjusting to such a new normal. One day I can feel overtaken by sickness and pain, and then come tomorrow I have already let go of how hard the day had been. On to the new. Only two weeks ago I […]

Turning Pages

March 3-April 27, 2014 My truth shared: I have been dealing with chronic pain for some time now – for many months. I have felt some guilt because I still have pain after trying everything suggested by my doctors. I feel like because I have had all the surgeries, doctors may see me as the […]

Hello Again. It Has Been Awhile.

Feb. 9, 2014 Wow! It sure has been awhile…almost four months since I last updated. I guess I needed to take a little break from everything. But here I am, hello again everyone. I will try to do my best to update more often. Please forgive me if I am unable (or not well enough) […]

Living With Dysautonomia (Autonomic Dysfunction) – My Unpredictable Moments of a Disabling Chronic Illness

Oct. 21, 2013 October is Dysautonomia Awareness Month! I suffer from a disabling condition called dysautonomia (autonomic dysfunction). Dysautonomia is a group of complex conditions, which may involve the entire body and is caused by a malfunction of the autonomic nervous system (ANS). The ANS regulates all of the unconscious functions of the body. My dysautonomia is […]

Good News

Aug. 27, 2013 Good News! Having a good day! I got my biopsy results back today from the enlarged right sided lymph node, not cancer! Yay! Very happy. The results suggest an infection, so I will be meeting with a doctor who specializes in infections soon. Hopefully we will get some answers. I did a […]

Low Blood Pressure

Aug. 18, 2013 Just a fast update: Forgive me for not being able to respond to emails lately. The last week my blood pressure has been really low. It is low while sleeping, while waking and all throughout the day and night. I am very dizzy and it makes writing and reading very hard. I’m […]

Periodic Paralysis – Rare Disease Causing Low Potassium and Scary Symptoms

May 23, 2013 Last night I had an event in which caused paralysis to my limbs and upper body, made me unable to speak, caused my heart rate to spike, my oxygen and breathing to decline, and caused severe chest and muscle pain and nausea. I have had many of these events over the years. […]

Living with Hypotension

Jan. 26, 2013 What is hypotension? Hypotension means low blood pressure. Anything below 90/60 mm Hg is considered to be below normal. And anything above 140/90 mm Hg is considered high (hypertension). Usually a good blood pressure reading for an average adult would be around 120/80 mm Hg. There are two numbers involved in taking ones blood pressure. […]

Eventful Appointment

Jan. 25, 2012 So, I had my appointment with the Autonomic Heart Specialist yesterday. I had some special testing done and met with the doctor. He spent over an hour talking with me and my dad. He was full of knowledge and the day was very eventful. He would like for me to see a […]

Autonomic Dysfunction Testing

Jan. 23, 2013 Been waiting 6 months and tomorrow is the day – I finally have my appointment at the Vanderbilt Autonomic Dysfunction Center for tests and to talk with the doctor about my orthostatic hypotension and other autonomic issues such arrhythmias, muscle weakness, low body temperatures, cold and heat intolerance and so on. Hopefully […]