Life Without a Pancreas Five Years Post TP/AIT

May 19, 2016 Today is a special day for me. A day worth celebrating. 5 years ago today I spent 14 hours on the operating table while one of the best surgical transplant teams performed the complex, life-saving surgery and transplant called TP/AIT. My entire pancreas and spleen were removed along with part of my […]

New Normal with Chronic Illness

March 26, 2015 Hi there. Hope everyone is having a good painfree day. I am starting to have some really good days this last few weeks. With all my chronic health issues I have learned to take the moments and days as they come. And each step forward is a victory and something to be […]

Food: How I Miss You, How I Wish I Could Have You Every Day. Struggles of a Broken Stomach: Gastroparesis.

Aug. 1, 2014 August is the national awareness month for Gastroparesis. Gastroparesis from a patient’s point-of-view: I struggle with a condition called gastroparesis which causes the stomach to have an inability to empty properly, which can make eating and even drinking fluids limited most days and even impossible on bad days. I believe this condition is much more devastating, […]

Turning Pages

March 3-April 27, 2014 My truth shared: I have been dealing with chronic pain for some time now – for many months. I have felt some guilt because I still have pain after trying everything suggested by my doctors. I feel like because I have had all the surgeries, doctors may see me as the […]

This Too Shall Pass

Aug. 9, 2013 I am feeling full of emotions lately. I sometimes have a hard time reaching out and asking for help. I have found that the times I tend to worry are when I don’t know why something is happening or when I have to meet or see a new doctor. I have learned […]

Ehlers–Danlos Syndrome (EDS) – Connective Tissue Disease – My Aching Joints

July 28, 2013 Last year my cardiologist tested my ANA and it came back as being positive and suggestive for a connective tissue disease. I was referred to a rheumatologist. When I first saw the rheumatologist he examined me and mentioned it seemed I had pain in multiple joints. Then noted my joints were very […]

For you…

Jan. 28, 2013 sending thoughts out today to all the patients and families suffering with any form of pancreatitis, SOD, cancer, recovery or illness. remember you are not alone. and there are many people who love you and who hope to see you get through this. let there be peace in your heart, hope resting […]

Home!

Nov. 21, 2012 12 days in the hospital this time. And I’m finally home. I was able to keep my food down and had no vomiting in a few days. So that was a good progression and I was able to avoid getting a PICC line and TPN or any feeding tube. But I really […]

Mitochondrial Disease Awareness

Sept. 17, 2012 If having problems involving three or more organ systems, one should look into getting tested for Mitochondrial Disease. It is Mito Awareness Week – Sept. 16-22, 2012! I have a family member who was diagnosed with Mitochondrial Disease at a young age. He is almost six years old and has had a […]

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Words From My Past – Sphincter of Oddi Dysfunction and Pancreatitis

July 22, 2012 Below are some words I wrote before starting this blog back in 2010. It reminds me of how hard it was to live with Sphincter of Oddi Dysfunction and pancreatitis and how far I’ve come since then. How thankful I am to be rid of my sick pancreas. 1-4-2010 – “Looking back […]