New Normal with Chronic Illness

March 26, 2015

Hi there. Hope everyone is having a good painfree day. I am starting to have some really good days this last few weeks. With all my chronic health issues I have learned to take the moments and days as they come. And each step forward is a victory and something to be cherished. I have been seeing signs of spring – trees blossoming, flowers showing their faces and hearing birds sing such lovely songs. It was a long winter for me. Hard struggles and many days of only seeing the walls from the bedroom where I rest day in and out. And at times I felt maybe my new normal was of such – a set back holding on to me as I fought my body and felt my muscles deteriorate.

2 Responses to “New Normal with Chronic Illness”

  1. Lisa Says:
    August 3rd, 2015 at 1:53 pm

    Hello, My name is Lisa. I do not have chronic pancreatitis but my husband does since 2010. He has been in the hospital numerous times and we try to find ways to avoid this. I am trying to find a support group for my husband and myself (his caregiver). There is not one in our area so I am reaching out trying to grab straws to find help to deal with this positively and help him not want to give up. As I am typing this, it is breaking my heart to see my husband hurt and there is nothing I can do to alleviate the pain. I try to cook low fat food and I am always correcting the way he eats. Sometimes I feel like I sound like a mother to him instead of a wife. I don’t understand the frustration he feels, but try to. He always states, “You don’t know how much I crave normal food.” I have recommended him to find a support group to let him know he is not alone and why he is so tired and exhausted all the time. I also would like to find a support group for spouses to help our loved ones through this process.

  2. Cheryl Says:
    February 3rd, 2016 at 11:42 am

    Lisa, I would love to chat with you. I am going through the same thing. I am actually at the hospital with him now. Been fight this bout do pancreatitis since Oct. 2015 so many complications. But will be heading home later today. Looking forward to see if we can help each other.

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