Posted by juliebernal | Filed under Chronic Illness/Rare Disease, Digestion & Nutrition, Dysautonomia/Autonomic Dysfunction & Neuropathy, Feeding Tubes & Total Parenteral Nutrition (TPN), Malabsorption/Dehydration
Oct. 31, 2014
It has been too long since I gave an update. I have been doing pretty well lately and seem to be mostly stable with everything. I am still on my TPN and down to every other day. I gained all my weight back and then some. I am very pleased and it feels much better to no longer have my ribs poking out. I have had more energy too which means I can enjoy at least one activity or so a day. Still need to be careful to not overdo it. I was able to go on vacation early this month and really enjoyed being able to visit New England in fall. I grew up in the north and it brought much needed relaxation and feeling of peace to be up there. I even got to do a very short hike. The fall colors and views all around were beautiful. But the walking did drop my blood sugars (which always happens with any activity) every 5-10 minutes though down to the 50s. Not very safe! I was shaky and short of breath. And my husband was worried the entire time. I kept saying I would be fine and I could do it. I ended up keeping candy in my mouth the entire time which helped a lot. So as much as I love a good short and easy hike, it is something I only do once a few years. But enjoyed it even with having to stop for 1,000 brakes. Lol.